The Autism

Published on The Autism National Committee Web Site.

The Autism National Committee condemns the widespread and excessive use of mechanical and physical restraints in restricting the civil and human rights of people with disabilities. We believe that the use of restraints is a failure in treatment.

People who have survived forceful restraint have reported they feared they would die in restraint, and some have died. A number of tragic cases of restraint-related deaths of children and adults have recently made the national news. Estimates of deaths occurring during or shortly after restraint currently range from 50 to 150 annually. The actual magnitude of such deaths is poorly tracked and subject to under reporting, a fact recently stated by a federal Department of Health and Human Services spokesperson.

Many have reported that they now live with fear and flashbacks that involve a sudden, involuntary re-living of this emotional and physically traumatic experience. Post-traumatic stress disorder is increasingly being diagnosed among persons who have been subjected to the systematic use of restraints.

It is clear that individuals' sometimes desperate efforts to communicate are ignored while staff force compliance for oftentimes trivial reasons; that the cumulative effects of repeated restraint can lead to diminished self-image and negative attitudes; and that when restraint is used, struggle is provoked and this natural response increases the danger of physical injury.

In our experiences as professionals, parents, and individuals with autism, we have witnessed too many times the horror and injury done to our citizens with autism. We are weary of seeing our people become victims.

Although any one of us, disabled or not, may at some point in our lives need to be restrained on an emergency basis, that should only occur when there is substantial threat of injury to self and others. Behavioral restraints are neither treatment nor education. They are merely procedures or methods that restrict freedom of choice and adversely affect the human development of people with disabilities. The use of restraints should be considered a failure in treatment. We totally condemn the use of behavioral restraints.

We call on national and state agencies to investigate the widespread mistreatment of people with disabilities through the use of restraints.

We call on Congress and state legislatures to pass legislation to protect people with disabilities; to limit the use of restraints on children and adults with disabilities to brief, emergency situations involving serious threat of injury to the person with disabilities or to others; to require immediate reporting of these incidents; to require thorough investigations of the circumstances that lead to the incident; and to require the development of supports and accommodations to prevent future incidents.

Approved 9-3-99.

© 1998-2000 Autism National Committee.

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COUNTER started on August 7th, 2002